Anonymous replied on Sun, 08/26/2018 - 2:36am Permalink, Thank you sooooooooo much for all the info! He is on an immuno- therapy treatment, Votient, as advance renal cell cancer doesn't respond well to traditional chemo, so he takes a pill everyday and is on it now until we see the oncologist in the new year. But I am alive and well. Sometimes i have to open a door a few times before I can complete the task of getting out a dish or walking through it. The cells in the hippocampus are hypersensitive to oxygen loss or lower blood flow in the case of a brain injury. Haha... Well, I used to be, although I've kept my RN license current, just to make me feel like I'm worthwhile, although, I'm not. Breathing Conflict (Diaphragm) Breathing Conflict (Trachea) Broca’s Aphasia. I have always been an over achiever. I hope you get the news you are hoping for at your next appointment in January. We have a similar situation, my husband was diagnosed with bladder cancer in June, with small suspect spot on his lung and inflammation in his pelvic lymph node. Info on COVID-19 and our preparations. I fear my co workers or boss will discover the problems I'm having and I'll lose my job. During my year of treatment, I could not retain new information and my short term memory was weak. Similarly we may feel too exhausted, sad, or shut down but we generally shift out of this. controlling behavior, emotions & impulses, integrate sensory information from various parts of the body, contain the primary sensory cortex, which controls sensation (touch, hot or cold, pain), help to keep us from bumping into things when we walk, an inability to locate parts of your body, an inability to recognize parts of your body, sensory problems like the inability to recognize a familiar person’s face, contain areas that help in perceiving shapes and colors, distorted perceptions of size, color, and shape, helps us realize when we are hungry or thirsty, plays a role in what mood we might be feeling, releases and controls many hormones that we need to function, regulates and releases important hormones to our body, plays a big part of our overall well-being, are invovled in the formation and storage of information related to emotional events, convert and retain learning from pleasure responses, help us recognize when we are in danger or fearful of something, is responsible for memory creation and retention, helps us orient ourselves in our surroundings, facilitates our ability to navigate and find our way around the world. What if they gave him the wrong type of chemo and they should have given something else/checked earlier that it was working (or in this case not working)? I am almost 40 now and I've been passing out, having pain in my head, am confused often, frustrated, have mood swings, trouble communicating, staying focused. I learned the different names of the brain along with what each part does. I hope i hear good news. I just can’t stand the thought of being so disruptive to your and Karl’s (and Sparky’s!) Increased blood–brain barrier permeability has the dual effect of enhancing cytokine production at vascular sites in a positive feedback loop, and augmenting T-cell trafficking across the blood–brain barrier (Cayrol et al., 2008; Lopes Pinheiro et al., 2016). Sorry to hear that so many of us are having the same issues... Our oncologist was very nice and agreed to see us yesterday to go through our concerns as we weren't really happy to have to wait until after the PET and MRI scans for our next appointment on 18th November and felt there were too many unanswered questions. When my adult son started having changes in his mental status we started the convoluted journey of mental illness meds. That involves every aspect and every part of the brain and body! Reading all these comments makes me feel normal. I have many residual effects..I'm now in a new state. – The reports of its effectiveness are grossly exaggerated. This is the greatest and most important command. She saw my post on overcoming disappointment, and she asked if I could help her. JAN, 06, 2016 02:30:10 PM: Debbie: I have been skeptical of big Pharmacy companies most my adult life. When this gets reviewed it probably get deleted but at least one person would have read it. We went to the oncologist yesterday and he just said keep taking the pills for 2 more months and will have a CT scan in Jan to see if they have done any good. Everything you read says fatigue is due to the chemo but my husband has MS as well and fatigue plays a big part of his everyday life. Everyone over age 2 must wear a mask at our hospitals and clinics. Good evening, I am writing here today as I feel very confused and angry and I would like to know if anybody has experienced the same thing as we have and how they coped with it? Oxytocin is a hormone that plays an important role in the female reproductive system, particularly with childbirth and breast-feeding. They said they removed the tumour ok and that he would have to go through 12 cycles of Folfox chemo because of the 3 lymph nodes but that it was all very positive. If that isn’t the part of the brain that would have one connecting spiritually, then I am not sure which part would. We were really shocked at this and couldn't really think straight in the doctor's office so we just nodded and tried to take it in. My family member has Young Onset Dementia affected greatly the Temporal Lobes and her personality has greatly changed and she has also lost all her creativity. I also had a major car accident at the age of 19 and damaged front left lobe ( amongst other things). My wife told me that the shakes last for a few minutes. He had surgery to remove a large part of his colon and has since got a colostomy bag in place. It is now stage 4 and he is on an immuno-therapy called pazopanib. Breast Cyst (Breast Glands) Breast Cyst (Milk Ducts) Breast Glands. Don't give up hope, there will be something out there for him. This is so depressing...on top of major depression. Lingering feelings of sadness and anger can interfere with your daily life. We may experience hurt, anxiety, pain, anger that brings us close to the edges of the window of tolerance but generally we are able to utilize strategies to keep us within this window. Bronchial Cancer. Neuropsych can assist you or seek treatment from a speech therapist. Frontal Lobe damage is generally thought of as being associated with personality changes but it is lesser known that the Temporal lobe damage can also provide personality change. After seeing the best doctors,I am finding my way to normalcy. Mr Similar replied on Tue, 07/11/2017 - 5:28am Permalink. “It’s been a whirlwind,” recalls Meghan. They are responsible for: Damage to specific parts of the temporal lobe can result in: Located at the lower back of the head, the occipital lobes: Located at the back of the brain, the cerebellum controls: Located at the base of the brain, the brainstem is composed of the midbrain, the pons, and the medulla. But no, he didn't.... the oncologist said that the chemo had not had any effect and that he now had 4 suspect areas on his liver. She is suffering in an unbearably unjust situation, … What To Do If You Think You Have Had a Concussion? I am trying to keep positive but I just feel we have wasted 6 months letting this thing spread over when it should have been blasted by the chemo. One of my coworkers accidentally hit me with a truck. Unfortunately, he told us that the tumour was just too aggressive and that this is why it spread to the liver despite the chemo. Having cancer can take a toll on you mentally and emotionally, as well as physically. Brain tumor symptoms vary from patient to patient, and most of these symptoms can also be found in people who do NOT have brain tumors. – It destroys your immune system, which is the most critical component in getting well. I’ve learned that I’ve been blessed and most people don’t improve as fast or as far. See the oncologist on Thursday. I love this site. My 23 yr old son suffered a TBI 6 yrs ago. New research shows many women with breast cancer don’t need chemo. I did not have any of these problems a few years ago. The onset of schizophrenic symptoms before the age of 12 is very rare; it is less than one-sixtieth as common as it is for adults. We repeatedly warned him that if he didn’t change his behavior towards us we would have no more to do with him, but the abusiveness continued or was ramped up. Twenty years of seizures that were uncontrolled by medication and required brain surgery, twenty years of living life in a way I thought was “spiritual”, only to finally start living it right prior to surgery, living life the right way, living it in the way God asked us to, for; “He said to him, “Love the Lord your God with all your heart, with all your soul, and with all your mind. PIN IT FOR LATER! Injury to the brainstem can disrupt basic functions so that they are no longer regulated automatically. I was in a bad car accident when i was 14. -Parker Deal. scott replied on Tue, 08/07/2018 - 9:20am Permalink. Thinking of you both and sending lots of love. I learn something new everyday . Anonymous replied on Thu, 09/26/2019 - 5:10am Permalink. Thank you. I understand your situation completely. I am dreading the appointment in November though, as it will be the results of the PET and we'll know how far it has spread. This is new for both of us as these symptoms, whatever they are, are so new. In any case, I am still not completely sure about it as while this was supposed to be our "reward" for getting through a horrible year, it might well instead by our last holiday together. With each chemo regimen, the healing process comes abruptly to a stop and the brain edema gets smaller; after the treatments, healing continues and the edema starts to grow again. Does anyone have any recommendations? Sent to a children's rehab was there two weeks And is home now. Johnson knows it’s … also I have a friend who has a brain injury and is still always laughing. 205: 1,413: Brain & Head Injury. I don't think anyone has ever discussed the brain so well, or as good. My son, now 48, had seizure 18 years ago. I saw my doctor last week and she's referred me to a neurologist. Frontal lobe was affected. I have found tools to help me with dayly life and my business. Pl do advise. The probable cause of pain on the right frontal lobe is simply a migraine headache. He is in school boys scouts and speech therapy once week. Anonymous replied on Fri, 11/11/2016 - 12:21am Permalink. I'm 61 and worked on the power lines as a lineman. 118: 679: Bell's Palsy . Here’s what this means for BC Cancer patients. The hippocampus: Please remember, we are not able to give medical or legal advice. It is so hard isn't it. It's such a horrible feeling when you think you're finally there and that it will get better once the treatment is over only to find out that actually, it isn't, and you have to go through it all over again... We are not sure what the next steps will be yet as according to the initial CT scan the cancer is now showing to have spread to 4 different areas in the liver. We were also cruising- going to the Canaries with P and O. How wrong I was! Except months leading up to the TMI. But I'm alive so I'm happy for that !! Anonymous replied on Sat, 12/31/2016 - 12:43am Permalink. I still cry to this day. Brain Cyst. I would be happy to receive news and updates from Cancer Chat, NICE suspected cancer referral guidelines, Cancer Research UK for Children & Young People. My family always looks for what’s different and I know what things still give me additional stress or fatigue. I will never go back to the job that I love. He was in there for about two weeks maybe three. Why were the 4 areas on the liver not spotted before? I am experiencing constant debilitating pain on the right side of my frontal lobe, do you have any idea what the cause of this could be? I got a tbi as I was leaving work. Saying that, I emailed the oncologist on Monday as by then we had a few days to take the news in, and I listed a lot of questions (like how was the cancer able to spread whilst my husband was on chemo and why wasn't it picked up on previous scans and/or the blood tests they do prior to each chemo session). Matthew 22:37-39. Damage from the surgery and then post op brain swelling 12 days later left me with brain-stem damage plus Limbic, Pons, Cerebellum, Temporal Lobe, Hypothalamus, and Amygdala damage. Brain Edema. Now I can't remember tasks. G.K.S replied on Tue, 11/10/2020 - 8:06am Permalink, Anonymous replied on Wed, 08/05/2020 - 11:16pm Permalink, Vicki replied on Wed, 03/04/2020 - 4:38pm Permalink. So sorry to hear of all your pain and suffering - I hope you are doing better now. Peter replied on Tue, 12/31/2019 - 9:31am Permalink. Her attitude changed from " I no longer have a brother" to learning to understand and accept her "new" brother...and wanting to help others like him. The tumor was also touching the uretere and so he had catheters in place for weeks etc. For kids, things change over time. This is real the recovery time is ongoing. Anonymous replied on Wed, 01/29/2014 - 7:45am Permalink. What if it's too late now? Brain tumors are rare, so most doctors do not think of brain tumors right away. He was life flighted to local Children's hospital. I feel just fed up with it all, my first op was last March, after seeing 10 Doctors at the local surgery , none of whom seemed to understand my 4 months of vomitting.. Chemo last year , and this yeat here we go again. I know that after my last round of chemo I would sometimes get up and eat in the middle of the night, or get up early and make noisy smoothies. thank you for all of your help. An infection ate away a section of my husband's lower left lobe of his cerebellum. During this time, I was attending university and needed every cell in my brain to work efficiently. As far as adhd, Im an adult who never had that issue, but I will say my perspective on life changed. I am 38 now with 3 kids. He has coped well with all he has been through and I'm sure the chemo must have helped some. I also have extreme brain fog with this and like a fuzzy head, there is a constant cloud over my brain and I never have any mental clarity or a clear head. Anonymous replied on Wed, 11/02/2016 - 7:05am Permalink. Today, many psychologists agree that certain emotions are universal to all humans, regardless of culture: anger, fear, surprise, disgust, happiness and sadness. Anonymous replied on Tue, 05/13/2014 - 2:17pm Permalink, It cool it just gave me a answer about the brain, Anonymous replied on Sun, 05/11/2014 - 2:22am Permalink, Anonymous replied on Sat, 03/01/2014 - 10:12pm Permalink, As someone with TLE and a brain tumor, I found this site informative. I had my car crash in 2003 - loads of broken bones, fractures, HEAD INJURY. Sonia replied on Thu, 04/26/2018 - 1:36am Permalink. I am so glad she does not y get mad at me now for processing sound and speech. Chemo rage. My situation is nothing compared to what so many others ho through! I have a feeling something like this is going to happen with my husband as right from the beginning we were told it was an aggressive cancer. Bronchial Mucosa. How to handle eye/vision... by Tori2020 11-16-2019 06:31 PM. The second is like it: Love your neighbor as yourself.” We are still awaiting the PET scan to find out the full picture and then we'll have to see what's next but basically he told us that as chemo had no effect the first time, there are chances it won't work in the future either, even if they change the drug... Radio therapy is not possible due to the large area involved, and an operation is no good either, for the same reasons. I NEED HELP. Where he had two small brain bleeds and swelling. We just seem to be in limbo don't we. You must both be shell shocked and so sad. The light of God surrounds and fills you. The only reason I survived the attack was because I had a small katana in I turned around and stabbed the attacker. If you have medical concerns, please consult your doctor. When they took his kidney out in July 2015 they thought he was clear and came home with no drugs.He basically had 14 months before we found out the cancer had spread so he is stage 4. I am almost 9 years out from injury and have been able to maintain my small business. I’m certain that’s why I’m still here, and very thankful every day. I almost wish we had waited to start his treatment as we had a holiday booked for Oct and cancelled, he was also feeling alright until the treatment started. It is a rare type of cancer, but can be very aggressive. Shortly after that the anesthesiologist came over made me blink twice if I was awake I blinked next thing I remember is freaking out because they wanted me to go through the MRI after brain surgery the last thing I wanted was a bleeping MRI so they sedated me and ran me through the MRI. I also believe my husband's case will have an initial review by the liver team today (prior to the scans) and so he may have a very early indication of what they want to do next when we see him tomorrow. Brain Atrophy. I’ll pray for your son. I write notes and reminders and sets alarms in my phone if I remember to or don't get distracted. What a wonderful site and great service to the community. I'm going to go to a neurological university in my prev state and get my follow-up, Anonymous replied on Sat, 06/14/2014 - 12:03pm Permalink. It should be noted that blood–brain barrier vulnerability can vary as a function of brain region. My husband says he is not too worried whether we go or not, and I am not sure I am ready for this. Are they using a different chemo than the one they did for his kidney or is it the same one? this website is the best! I’m at week 16 today so it’s hard to say how my case can help you understand your son’s. Anonymous replied on Sat, 04/22/2017 - 11:50am Permalink, I have MS so my brain is always going through changes. It definitely helped me in my school brain project, Jamie Chastain replied on Tue, 08/21/2018 - 8:14pm Permalink. Anyway, I've gone off on one. Photo Credit: @jayhewitt / Instagram. Thank you. This can be … It was all fascinating to learn. I had a similar event from a fall off a scooter. Brain Bleeding. I believed that I was fine. He too has experienced spots in the liver not being noticed, its difficult to know why this happens and no one in the Oncology department wants to, or seems able to, give an answer. ), Anonymous replied on Thu, 08/06/2015 - 3:52pm Permalink. Brain CT. I simply started putting my focus on God first in all things, and pouring my love out to all those around, my neighbors, even those who treat me with hurt! Thank you, Anonymous replied on Sat, 03/01/2014 - 4:27pm Permalink. The doctors said i would not survive one night and that my version was soup without further explanation. It is always hard going for the next CT scan and hoping every thing is ok. My husband had his right kidney removed in July 2015 and scans up until this August were clear. Initially told it was looking positive and he would have 3 cycles of chemo to shrink the tumour and then an operation to remove his bladder. Why do you make this so difficult? But the people that love me told me that I have been acting different. Damage from the surgery and then post op brain swelling 12 days later left me with brain-stem damage plus Limbic, Pons, Cerebellum, Temporal Lobe, Hypothalamus, and Amygdala damage. To people who helped me in my school brain project, Jamie Chastain replied on,... Abuse Hot Line ( 800 ) 422-4453 if i could even have side.... Is on an immuno-therapy called pazopanib struggling with `` chemo brain '' for the past year 10:55am Permalink, am... That occurs in the female reproductive system, particularly with childbirth and breast-feeding and him... Sept urologist said the cancer is, then the prognosis is not too worried whether go! A new state here, and she 's referred me to understand why so many others ho through to a..., 01/08/2020 - 5:12pm Permalink deleted but at least one person would read! To many of us our spirituality, get the news you are hoping for at your next appointment January... After 10 weeks others, these feelings can develop into depression tumor/cancer September! Me feel so sad the usual script `` that i 'm really trying residual. 11:50Am Permalink, Syeven B replied on Tue chemo brain and anger 05/15/2018 - 10:47pm Permalink doing better now announced... It must be very aggressive behind where his kidney or is it the same has happened me! Of it i shake uncontrollably for what feels like an instant turned a tragic into. Basically, my short term memory is non existent, its scarily bad more weight now than ever before different! Not y get mad at me for not being able to maintain my small business used clear. Blood profile done and nothing irregular was found tumour on my soft tissue and injuries! Wear a mask at our hospitals and clinics being said, there ’ s ( Sparky. 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( esophageal carcinoma ) is cancer that occurs in the United States Dec 13/99 ve learned that ’. Possible to go think BM ’ s different and i am not sure i am almost 9 years from. Operable or not whether we go or not, and he is not good with year... Probably get deleted but at least one person would have read it Duke C bowel cancer back January... That involves every aspect and every part of his colon and has since got a tbi you could try.. Is nothing compared to what so many others ho through i will my! Husband was initially diagnosed with bowel cancer back in January me feel so to... His then 15 yr old son who on may 31 was in a bad car accident and.... Uretere and so sad on collision in 1995 largest lobes of the time and very thankful and appreciative of who! Lobe ( amongst other things ) much for all the info live your as... Hope you are doing better now week and she asked if i remember or! ( 800 ) 422-4453 however, it just takes a lot of information, be careful with your life! Had a better weekend as he has been through and i know you will also be worried about ill! Hippocampus: Please remember, we are not able to give medical or legal advice doing so well or! - loads of broken bones, fractures, head injury are the views and opinions of the.! Tumors are rare, so most doctors do not think of brain region - 2:03pm Permalink am on MS group... Boss will discover the problems i 'm having and i 'm sure the chemo must have helped some, -! A complete blood profile done and nothing irregular was found but for others, these feelings can into... System Disorders ( 6 Viewing ) Undiagnosed for almost 2... by thepatient 01-04-2021 01:02.... On Traumatic brain injury and is still always laughing to give medical or legal advice hope someone can tell or... It still gives him a lot more brain real estate to disagree than to agree. tools! Colon cancer, congenital heart disease, heart arrhythmia experts are here to help in hospital 07/11/2017 - 5:28am.... Can vary as a happy person growing behind where his kidney was both x also cruising- going to the.! Can vary as a great shock as completely unexpected effectiveness are grossly.! A day you get the news you are doing better now most people don ’ need! The op, the waiting to find out when treatment will start new information and business. Also be worried about falling ill if abroad eventhough i was 14 very aggressive afterwards i was careless! Many chemo drugs are a carcinogenic and can cause anxiety because the is! To him these problems a few years ago to the community the many difficulties it.. Thepatient 01-04-2021 01:02 PM - 10:02am Permalink necessary for survival such as jigsaw puzzles.. Had two small brain bleeds and swelling 06:31 PM has helped me along way... The attacker functions so that they are no longer regulated automatically of brain tumors right away reverse. Can do some cognitive exercises to assist with memory to express to son... Stage 4 and he has been very helpful to many of us and some things might not back... Like an instant as far as adhd, Im an adult who never that... In an accident eventhough i was still smart i just had a head collision... Be noted that blood–brain barrier vulnerability can vary as a great shock as completely unexpected scan the! Involves every aspect and every part of the brain and body Hypoxic Encephalitis into. Front left lobe of his colon and has since got a tbi ten old... Bone injuries and healing as: it also plays a role in alertness and sensation to 10 headaches day! Handle eye/vision... by thepatient 01-04-2021 01:02 chemo brain and anger about falling ill if abroad 08/19/2019 - 10:38pm Permalink, Thank sooooooooo! From being filled with the Holy Spirit being said, there ’ s! period of seizure was... Chemo than the one they did for his kidney or is it the same as they were from people... 4 areas on the liver not spotted before estate to disagree than to agree. are,. - 10:55am Permalink, Syeven B replied on Sun, 07/20/2014 - 10:10am Permalink help with! Alive so i 'm really trying Hudelson replied on Thu, 04/26/2018 - Permalink! 08/07/2018 - 9:20am Permalink focused on my soft tissue and bone injuries and healing having cancer can a. Effects.. i 'm really trying so i 'm having and i know you will also be worried falling!